They gave her an IEP that included
-Daily Resource room
-extended testing time
-test read to her
-Daily Reading Help
Well do you remember my great friend Kathleen. her boy Billy who has down syndrome? She told me of an optometrist Dr. Bessler who specializes in Vision Therapy. Billy went there and found that their supposedly awesome doctor in Manhattan prescribed Billy with 3X too strong of glasses {no wonder he hated them so much} Kathleen would hear all these success stories and told me that even though in Billy's case he got better then plateaued and then never seemed to get better so they quit the therapy. Anyway she told me several times to go try it out. Most Insurance don't cover the cost and it is really expensive but because she was a RN and we had the same insurance that normally is 100%covered I took my chances. I figured I had to feel good and try everything I can. There were parts that insurance wouldn't pay but I guess my insurance they said was the best they new of {which was a big blessing} {I still paid160.00 in copays a month and 360.00 evalution fee and 99.00 for second evaluation. and to think I have their best insurance the majority of people pay over 5000.00 for this treatment} I'm so blessed!
I had Alix tested and found out that she has DOUBLE VISION? I remember her as a baby crossing her eyes a lot and looking a little coo-coo but my baby book made it sound like it was normal so I didn't worry and she was my first do I didn't know any different. I also knew Alix didn't jump early well in fact she didn't jump for a long time but looking back I can see why that was if she would seeing things double, THINGS MUST OF BEEN SO UNCLEAR AND SCARY AT TIMES.
We found that Alix has a hard time focus close then far away and focus close again. So coping the board was nearly impossible and she flunked the copying test the optometrist had her do.
Dr. Bessler put her on Vision Therapy twice a week for 2 sets of 16. She immediately prescribed her glasses and doesn't she look beautiful on her. I really love them on her. I really do. The doctor said they may be temporarily, becuase even though Alix has double vision is becuase her eyes haven't fully developed yet. She said therapy is like a bike wants you learn you always remember. Not like going to the gym and once you stop you get weak again.
It was crazy the moment I told her teachers and resource room teacher her new founding, just the glasses alone everyone saw a huge difference. The glasses are only a +.50 enough to allow alix to relax her eyes has she looks up close at things.
We started therapy the first of April and by the end of the school year in June we saw test scores that
were once
30's, 40's and 50's
are now
some 80's but mostly 90's and 100%'s
When I went into my end of the year CES meeting I was crying tears of Joy rather than tears of frustration, sadness and failure, emptiness.
Well in fact TODAY. Dr Bessler told me about her test results from her second evaluation to compare for the first time her progress. I should get the papers tommorrow so hopfully I will update them better.
But Alix no longer sees double anymore. they corrected it through therapy!
She will continue 10 more sessions cause she still needs a little help focusing from far to near and Dr. Bessler feels she could be discharged after that.
I can't tell you how Kathleen and many ways has been such a blessing in my life. I believe it's the reason why I was suppose to move to Malverne even though it was only for a short time {sense then we moved but I'll tell you more about that later.}
If it wasn't for her we still would of been so frustrated and I know what the school was offereing wasn't enough. We are so excited to start 4th grade with a new start. Alix for the first time is picking up books that she never would before without me hounding her. She also was doing homework in 30 minutes rather then the hour and half like before the therapy.
I've heard this is very controversial in the medical field and even doctors at Jon's work thinks it's crazy but JOn and I don't. It may not work for everyone, but it worked for Alix. and I'm so happy that we did the things regardless the cost to get her to be as successful as she wants to be.
This is a Blessed Day!
I am so grateful to my Heavenly Father who listened to my prayers and through others my prayers were answered through friends and family members.
Kristie would read over the phone with Alix
Oupa would buy Alix audible books along with the book so she could follow along.
I'm so blessed to be surrounded by so many people who love and care for Alix.
Dear Alix,
I couldn't be more proud of you not giving up through out all this difficult time, repeatily day after day getting bad marks the entire year until the last 2 months of school.
I love you and going through this trial and hardship at such a young age will only allow you to be a stronger person and ready for the next trial the Lord wants you to learn.
Take uncontrolled trials as a compliment knowing the Lord is just molding you into something so grand and more beautiful.
Alix you will be a answer to so many peoples prayers cause you already have been an answer to mine. You are inspiring to me and makes me want to work harder just like you.
Mom and dad are proud of you!
Love,
Mom
Ether 12:27
"And if men come unto me I will show unto them their weakness. I give
unto men weakness that they may be humble; and my grace is sufficient
for all men that humble themselves before me; for if they humble
themselves before me, and have faith in me, then will I make weak things
become strong unto them."
1 comment:
Alix
Wow I am so proud of you. You have always been such a strong girl. I am proud of you for all the hard work that you put into everything. I am excited to hear more about your progress and your 4th grade year.
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